I took a bit of an unintentional break from updates. It probably has a lot to do with going from sitting around in the hospital to return to, well, real life I guess. There was a lot of time to be concerned about just one thing in December. Now, besides the ongoing chemo, there is work, all things associated with owning a house, family, etc. I'm not saying it is overwhelming, it's just life. Life fills the time up quick. Then, it was March. March 5th, actually...3 months after the original diagnosis, incidentally.
I've been home with Landon for about 2 weeks now. He is through what was the last toughest part of his chemo...if all goes to plan, it gets easier from here. He had 4 intrathecal chemo injections (spinal taps) over 2 weeks in the last phase. Now they are spaced 9 weeks apart for a while, and then 18 weeks apart. Our trips to the Jimmy Fund Clinic are on most Fridays...at the beginning of each 3-week cycle, and also separate 2-week cycles for chemo that can only be administered at the clinic. They can overlap, giving us a break from the drive up to Boston.
Landon has been adjusting well. His strength and good spirits have rebounded pretty well and continue to improve. He has had playdates, been to the playground and library, been a mini-mall rat, and gone on errands with us often. We are still wary about some places with a lot of little kid contact (our local trampoline park, for instance), but that will come with time.
Our tentative timeline for returning to daycare full-time is still March 30th. It might seem a little early, but we are actually encouraged by his doctors to get him back to school. They have found that a return to developmentally appropriate activities supercedes the risk of getting sick during therapy. Once the Jimmy Fund Clinic sends down their school liaison to perform a puppet show to prep the kids for Landon's return, we hope to ease him into it with some half-day visits. So, we are close to almost-normal again.
Things are alright. :-)
I have some other things I've been meaning to post, so be on the lookout for some more updates!
I'm Landon's daddy. I'm super amazed at how strong and brave he is, and you should be too!